Yeah, it worked really well actually. It seems that their seizures are related to sugar metabolism in the brain and switching to a fasted state enabled the production and use of ketones instead of glucose. That leas to a reduction from seizures as much as twice an hour to one or less per day most of the time. Now we (solidarity and other benefits) eat a really simple diet of mostly simple cuts of meat cooked to medium-rare as well as chicken wings and butter. The butter maybe an issue though, so we are testing removing that too after the next long fast to see if we get better results.
So down from ~30 seizures per day to maybe 1 seems like a fairly good fix and we just treat it like an allergy. No carbs, no fibre, no sugar alcohols, no artificial sweeteners, and soon maybe no butter either. Better thab seizures, good for overall health so far, and fairly sustainable. I may miss cheesecake but not as much as I don’t miss my partner having seizures all day.
On a keto based diet, you’ll need those fats. Perhaps consider something like sunflower oil instead though? Nuts also come with plenty of fats and have a lot of fiber too. Some have carbs more than others, so you’d have to check which ones fit your specific diet, but these are a great source of healthy fats and help keeping the gut biomes working well.
Edit: just to add, you could experiment with the fiber more. Long carbs have a very different effect on the body vs. short ones, so those, in moderation to keep the keto state up, could be okay for the partner too, and perhaps give more robustness/variety to the diet?
Well no shit. That’s fascinating. So now where are you at with the problem?
Yeah, it worked really well actually. It seems that their seizures are related to sugar metabolism in the brain and switching to a fasted state enabled the production and use of ketones instead of glucose. That leas to a reduction from seizures as much as twice an hour to one or less per day most of the time. Now we (solidarity and other benefits) eat a really simple diet of mostly simple cuts of meat cooked to medium-rare as well as chicken wings and butter. The butter maybe an issue though, so we are testing removing that too after the next long fast to see if we get better results.
So down from ~30 seizures per day to maybe 1 seems like a fairly good fix and we just treat it like an allergy. No carbs, no fibre, no sugar alcohols, no artificial sweeteners, and soon maybe no butter either. Better thab seizures, good for overall health so far, and fairly sustainable. I may miss cheesecake but not as much as I don’t miss my partner having seizures all day.
On a keto based diet, you’ll need those fats. Perhaps consider something like sunflower oil instead though? Nuts also come with plenty of fats and have a lot of fiber too. Some have carbs more than others, so you’d have to check which ones fit your specific diet, but these are a great source of healthy fats and help keeping the gut biomes working well.
Edit: just to add, you could experiment with the fiber more. Long carbs have a very different effect on the body vs. short ones, so those, in moderation to keep the keto state up, could be okay for the partner too, and perhaps give more robustness/variety to the diet?